Disappeared From the Face of the Earth

Goizom's story

Goizom Danza Maleguidjeo’s name translates to “disappeared from the face of the Earth” in her native language in Cameroon. Unfortunately for Goizom, this is not far off from how she spent her childhood. She could not attend school or play with other children her age because of the fear from local parents in her village that she would bewitch their children.

It is a tradition in Goizom’s Mafa tribe for families to send their first daughter into marriage when they turn 16, but this was not the case for Goizom. At age 18, she still lived at home with no suitor, or any friends to talk to. The men in her village believed that since Goizom was born with a cleft, all of her future children would have clefts as well.

Goizom’s life changed one day when a Smile Train community worker came to her village. When the community worker announced that Smile Train helps provide free surgery for children with clefts, Goizom couldn’t believe the news. She knew her parents could not afford the financial cost of a surgery to fix her cleft and she had given up on her dream of having her cleft repaired a long time ago.

When Goizom arrived at Smile Train’s local partner, Maroua Regional hospital, she was surprised to see so many people who had similar cleft conditions as her own. She watched as patients would go in and out of surgery and was amazed by the great new smiles on their faces. When her turn finally arrived, she was ready. 18 long years of waiting for a new smile were finally over.

Today Goizom has returned to her village a completely changed person, proud of herself and full of self-confidence. No longer “disappeared from the face of the Earth,” she is looking forward to her bright future that is now full of endless possibilities.

Goizom After

9th Annual Mini Marathon for Smile Train at Pleasant Hill Elementary

Celebration Post Race_PHE

On April 24, 2015 Pleasant Hill Elementary School in Columbia South Carolina held its 9th Mini-Marathon for Smile Train. Physical Education teacher and real-world Smile Train super hero Thomas Cronin, who was born with a cleft lip and palate, hosts the event every year. He says that he feels so fortunate that he was able to receive surgery when he was a child, and his hope is that every child born with a cleft is able to have the same opportunities for a healthy and productive life that he was given.

Cronin Father and  Sons_PHE

Miles for Smiles_2_PHE

Presenting Check_PHE

On the day of the event each grade level (Kindergarten through Fifth grade) runs and walks for 30 minutes on the school’s outdoor track. This year, the event raised a total of $13,090 for Smile Train. This is enough to provide surgery for 52 children with cleft lips and palates.

Smile Train’s Mini Marathon has become a tradition at Pleasant Hill Elementary School. This year, Smile Train’s own Director, Program Development, Shannon Lambert, got to attend the event, walk around the track with some students, and answer student questions. She said some of the most common questions were “How many surgeries did Smile Train help provide last year?” and “How long does it take to complete a surgery?” One student, a young boy, shared a story with Shannon about his cousin that lives in Guadalajara, Mexico who was born with a cleft. His cousin didn’t have transportation to get to a treatment facility, so the little boy’s family in South Carolina drove to Mexico to bring the boy to the hospital for surgery.

Overall, Pleasant Hill Elementary School’s Smile Train Mini Marathon gives the students a chance to learn more about a meaningful cause, and how something as simple as a smile can change a life, all while getting fit at the same time.

A Fresh Start for Little Jiaxin

1

Sichuan Province, China – The arrival of a new baby typically brings a lot of happiness to a family, but when little Jiaxin was born with a cleft lip and palate the Yangs knew they wouldn’t be able to afford surgery for their child. To get Jiaxin the help she needed the family moved to Chengdu in hopes that the city would have better medical facilities.

Pre-Operation(IDú║sc-13-77954)To survive in their new city, Jiaxin’s father worked doing manual labor at a construction site, and her grandmother and grandfather worked long hours every day to make extra money for the family. All of the hard work was worth it when the Yangs found out that Smile Train’s local partner hospital, West China College of Stomatology Sichuan University, would be able to give Jiaxin the help she needed.3

Jiaxin, with the help of Smile Train, began her journey to a new smile with free cleft lip surgery. Since her surgery, Jiaxin’s family said they now have a new sense of hope and a more positive attitude in their own lives.

Today, 2-year-old Jiaxin is a lovely and lively girl who loves to laugh and talk.

In March 2015, Jiaxin met Smile Train’s CEO, Susannah Schaefer, along with Shi Bing, Vice President of West China Stomatology Hospital of Sichuan University, and Dr. Shell Xue, Senior Vice President and Regional Director of Smile Train North Asia. Susannah was in China supporting the local nurses at a special training conference. Susannah’s advice to little Jiaxin was to continue to have the confidence to overcome difficulties and to embrace her new life.

Jiaxin’s mother is very grateful to Smile Train for giving Jiaxin the ability to be like the other children, and a second chance at life. She said that Smile Train not only gave them financial help, but also brought hope to them and an opportunity for a brighter future. 2

 

Jessica Gutierrez: Journey To Save A Life

052

Jessica Gutierrez (above, center) tells us about her visit to see local Smile Train medical partners in Buenos Aires, Argentina and a young mother who made a strong impression on her.

Buenos Aires, Argentina – I am an Associate, Direct Marketing at Smile Train and every day I see pictures of the wonderful new smiles of our patients. I am always in awe of the great work our partner surgeons and medical staff do every day of the year. Recently, I was given the opportunity to visit some of Smile Train’s local in-country partners in Argentina to see first-hand the impact one simple surgery has on not only a child, but their whole family. When I arrived at Asociación PIEL, I noticed a woman looking very nervous staring at her baby. I went over and the anxious mother, Giuliana, introduced herself and her baby, Juan Ignacio. He was a vivacious and happy little boy, and he chuckled every time I waved at him. Giuliana told me how scared and shocked she was when she first realized her child had been born with a cleft. She had never seen anyone with a cleft before and didn’t know what to do. As soon as she heard about Asociación PIEL she knew she had to make the trip to have her son treated.

j2

Giuliana lives almost two hours from Buenos Aires, she traveled with her mother-in-law on a bus to our partner surgeon, Dr. Bennun, to treat Juan Ignacio. I happened to meet her the day before Juan Ignacio’s surgery, which helped me understand why she seemed extra nervous. Giuliana felt better when we spoke to another mother whose son had been successfully treated by Dr. Bennun and was visiting for follow-up care. The following day, I talked to Giuliana right before Juan Ignacio’s surgery. She was nervous but also anxious to see her son after the surgery. She had heard other parents say that they didn’t even recognize their child after surgery and she couldn’t wait to see his new smile!

I left the hospital that day knowing that not only Juan Ignacio’s life, but also Giuliana’s was about to change. She now has the confidence that Juan Ignacio will grow and develop just like any other child and will have the opportunity to live a full life. The experience of meeting families like Juan Ignacio’s showed me just how powerful the work Smile Train and our partners are doing. I recently sent his mother some of the pictures I took while I was in Buenos Aires and I can’t wait to hear about how Juan Ignacio is doing – smiling a lot I bet!

j3

Gulaab Presents… A Monkey Show!

Gulaab 1
Gulaab, spent 46 years of his life with an unrepaired cleft lip living in Pakistan. Because of his cleft, it was hard for him to find a job, so he made a living moving around from village to village putting on monkey shows. Gulaab formed strong bonds with his monkeys. He connected with them because they accepted him no matter what he looked like. Unfortunately, because of his unrepaired cleft, he was unable to form the same kind of bonds with other people.

One day Gulaab was putting on his show at a gas station, and he was approached by Dr. Ijaz Bashir, who by chance was the founder of the Cleft Centre Gujrat. Dr. Bashir told Gulaab that there was a way he could receive free cleft surgery. Gulaab was amazed and said it was the best news he’s ever heard.Gulaab 2

When Gulaab arrived at the hospital, he worried that he couldn’t afford to take a break to heal from the surgery, his shows were his only livelihood. The Cleft Center Gujrat came up with a perfect solution. They offered to help compensate Gulaab by amusing the babies in the hospital who were waiting for their cleft surgeries with his monkey shows and Gulaab accepted the offer happily.

After his surgery Gulaab left with a big smile on his face. He was overjoyed to get back home to see his monkeys.


From Cleft Patient to Cleft Surgeon: Zhou Xiaomin’s Story

After Surgery(STX ID:GD-4-08-01093)“I was shy, and helpless, the world became pale in front of me. For a very long time I didn’t dare to smile, I was at war with my heart. I spent most of my life overcoming an inferiority about my deformity and my life was filled with inner anguish.”

This is how Zhou Xiaomin felt his whole life, before he received surgery to fix his cleft lip four years ago. Zhou says he grew up in an ordinary rural home in China and he tried to hide his inner anguish from his family. Zhou says, “I needed to teach myself that I had to let go, I belonged to the world too. Life is hard for a lot of people and it was time to pursue my freedom.”

After high school, Zhou decided to pursue a profession in the field of stomatology, the study of the mouth. He was admitted to Gunagzhou Medical College as a postgraduate in 2009. He was instructed by Dr. Zheng Cangshang, director of Stomatology Department of Shenzhen 2nd People’s Hospital, which is a Smile Train partner hospital.

SONY DSCZhou says, “Dr. Cangshang’s positive attitude toward life and helpful spirit deeply affected me, and it filled me with hope for the future.” After years of waiting, Zhou requested that Dr. Cangshang perform his cleft surgery, financed by Smile Train. After the surgery took place in 2010 Zhou said, “My life changed completely since then. I began to learn to smile”.

Now Zhou, better known as Dr. Zhou, is finally the confident young man that he always knew he could be. His dream of becoming a cleft treatment surgeon is coming true, and he has a lot more to smile about. Zhou says he wants to devote his professional knowledge and skills to help more Smile Train patients.

He would like to share his story to encourage more Smile Train patients to change their lives as well. “As a doctor, I will devote all my lifetime to help the children with cleft lip and palate, but we have a lot of work to do. Thanks to Smile Train, you gave me hope and the courage to change myself,” says Zhou.

 

Bere’s Story: No Need For Silence

Javier Campuzano Bere was born in Hidalgo Mexico with a cleft lip and palate. Bere’s mother, Domitila said that Bere had several cleft related medical problems, but despite them, she was a happy little girl.

When Bere got older she was excited to start her first day of school. However, when she got there the other kids made fun of her and started to call her names. When she returned home after her first day, Bere told her mother she never wanted to go back to school again. Bere became ashamed to talk at school because her schoolmates would come and look at her mouth and stare. So Bere gave up speaking at school altogether, and until her mom would pick her up at the end of the day she would just sit in a chair saying nothing.

Fortunately, Domitila found out about Smile Train, and was relieved to find that they would give Bere free surgery, she could not afford, to fix her cleft lip and palate. After the surgery her mother was so pleased and they both decided they would give school a second chance. A few weeks after the surgery, Bere was back in school and the other children were happy to see her.

Now Bere is doing great, she has many friends, and is much more talkative and outgoing. Her mother says, before Bere’s surgery she would never draw faces with a mouth, but now she loves drawing them and now the mouths always have a smile. Javier Campuzano